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Meeting Our Objectives 2017
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To Educate, Empower and Save Lives

Thank you for supporting our objectives in 2017!

 

Justin’s video story inspired a specific NIH Task Force meeting on high Lp(a) and pediatric stroke.
His appearance 
on a local TV station reached
3 million viewers

 
          

 Laird’s story in our mailer to 40,000 physicians
inspired the growth of our Lp(a)
Physician specialist network.

Tiffany’s video story inspired
a research study furthering the
knowledge base of high Lp(a) and aortic stenosis

 

Three things to help prevent cardiovascular events and deaths due to high Lp(a)?


1. Educate about high Lp(a)

Public Awareness Results

Only National and Global Organization raising awareness for high lipoprotein(a).

Top Google ranking for Lipoprotein(a) search

Established brand for The Lipoprotein(a) Foundation globally.

>9,000 visitors to website monthly

Website membership registration more than doubled year over year.


Foundation video on every American Airlines flight for June and

July 2017 - 6 Million passengers reached.

>400 Million impressions from press releases, 500 online headline postings.

The Lipoprotein(a) Foundation featured as a link on two People.com stories featuring Bob Harper's recent heart attack and his high Lipoprotein(a)

  • Lipoprotein(a) Foundation Proposes New ICD-10 Diagnostic Code for Elevated Lp(a) During Cholesterol Month Foundation Reveals its “Good, Bad and Genetic: Know ALL Your Cholesterol Numbers” Campaign In Support of National Cholesterol Education Month featuring a quote from Bob Harper, celebrity fitness trainer

  • Lipoprotein(a) Foundation Thanks Bob Harper for Revealing High Lp(a) Levels Led to His Recent Heart Attack
    on The Dr Oz Show

Commends Mandatory AEDs in Every Gym Efforts and Encourages Broader Access to Testing for High Lp(a)

 

  • Lipoprotein(a) Foundation Supports Stroke Awareness Month and Highlights Link Between Lp(a) and Unexplained, Undiagnosed Strokes

Highlighting the impact of stroke on young adults and adolescents during Stroke Awareness Month, the Lipoprotein(a) Foundation has issued an Infographic to raise awareness about stroke education

 

  • Lipoprotein(a) Foundation Supports National Heart Valve Disease Month, Highlights Genetic Link between Lp(a) and Aortic Valve Disease

Studies Demonstrate that High Lp(a) is Strongest Independent Genetic Risk for Aortic Valve Disease

 

Two local television health news segments in CA and NV,
3 million viewers, 45,000 Facebook "likes"
alone

 

 

>5,000 Foundation brochures distributed

 

Social Media Results

Public Facebook page 2900 followers

80,000 plus impressions created in 2017 to date on Facebook

Twitter 1500 followers

589,000 impressions created on Twitter

890 LinkedIn followers

50,000 views of patient advocate videos on Youtube channel


2. Find a Physician

Healthcare Provider Awareness Results

 

Mailer to 40,000 cardiologists resulting in 600 physician members added to website

Created physician location program

Recruited attendees for the Lipoprotein(a) Symposia at the American Heart Scientific

Session - standing room only

 

Booth or foundation presence at American College of Cardiology and

American Heart Association Scientific Sessions

Physician newsletter and website section

European Atherosclerosis Society Lp(a) Handbook distribution via website
 

Nurse Practitioner Awareness Results

Lipoprotein(a) Information Sheet created with the Preventative Cardiovascular Nurses Assoc.

 

3. Access to a life-saving Lp(a) blood test, treatment, and support


Strategic Objective Results


Submitted proposal for and participated in a The National Heart, Lung, and Blood Institute (NHLBI working group (WG) on Future Research Directions on Lipoprotein(a) and Cardiovascular Disease in
Bethesda, Maryland to evaluate the state of the art of Lipoprotein(a) (Lp(a))
research and the roles of Lp(a) in cardiovascular disease, to identify research
gaps and barriers,
and to recommend future research opportunities in Lp(a) research.
The Foundation is grateful to the researchers involved in the process and to the patient advocates, Justin and Tiffany, who shared their video stories as part of this meeting



Submitted proposal and attended a public meeting in support of the
foundation's ICD-10 Diagnosis Code proposal
for high Lp(a) at the Centers of Disease Control. Due to go into effect after review of the World Health Organization in 200 countries worldwide October 2018 - awaiting approval


Helped generate awareness and enrollment in two clinical trials for high Lp(a)

>400 patients provided information about physicians in their local area

 

Patient Support


Patient  advisory board

Private Facebook patient support page - 300+ members

Online patient community on Facebook and within website (SocialLink)

Foundation membership more than doubling year over year

Global, online, support services

Clinical trial communication

Patient newsletter

Community outreach - Oracle Health Fair, 200 brochures distributed

Regional support meetings 2017

Thank you for your continued support, clicks, donations, and contributions in 2017

Thank you to our Patient Advocates, Governing Board, Scientific Advisory Board and Partners

We hope you will help us start strong in 2018

Give the gift of prevention to your familyand let's save lives-maybe even lives in your family!

Donate here

 

Wishing you; health and happiness always.


Gordon's Story - Lifetime of Fitness and still

needed triple bypass

 

Sheri's Story - Young, Fit,

Having a Heart Attack

   
   
   
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