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Bringing Real Hope in 2018
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Your Donation Brought Real Hope in 2018!

 

Gordon's video story reminds us of the inherited
impact on families with high Lp(a)

 
Help us continue the
          

 Bob Harper's story gave us national awareness

for high Lp(a) in the NY Times featuring the Lipoprotein(a) Foundation here

Sheri's shared her story to raise awareness for 
women's heart disease and to advocate 
to find answers for her children

 

We need three things to help prevent cardiovascular events 
and deaths due to high Lp(a)?


1. Educate about high Lp(a)

Public Awareness Results

 

Only National and Global Organization raising awareness for high lipoprotein(a).

Top Google ranking for Lipoprotein(a) search

Established brand for The Lipoprotein(a) Foundation globally.

Grown from >9,000 visitors in 2017 to >14,000 visitors in 2018 to website monthly

Website membership registration continues to more than double year over year.

 

     


  • Lipoprotein(a) Foundation Announces Two ICD-10 Diagnostic Codes for Elevated Lipoprotein(a) Approved 
    by the CDC press release here

New ICD-10 Diagnostic Codes Could Accelerate Access to Simple Blood Test for Elevated Lipoprotein(a) and Help Prevent Cardiovascular Events in People Whose Only Risk Factor is Lipoprotein(a)


              

  • Lipoprotein(a) Foundation Hosts Gala Fundraiser to Celebrate Opening of Lipoprotein Exhibition at the International Museum of Surgical Science press release here
    Lipoprotein Exhibition Dedicated to Dr. Angelo Scanu, Pioneering Cholesterol and Lipoprotein Researcher from the University of Chicago 

Chief Scientific Officer featured on Canadian TV and Radio 

     

Lp(a) and Patients featured in the News

   

  

  

   

Social Media Results

Public Facebook page  grown from 2900 to 3455 followers

164,000 plus impressions created in 2018 to date on Facebook

Twitter grown from 1500 to 2119 followers

570,000 plus impressions created on Twitter

890 to 1020 LinkedIn followers

10,000 views of patient advocate videos on Youtube channel

>5,000+ Foundation brochures distributed

2. Find a Physician

Healthcare Provider Awareness Results

 

     

  


3. Access to a life-saving Lp(a) blood test, treatment, and support


Strategic Objective Results

Awareness

  • National Public Awareness - New York Times - Science Section, Martha Stewart Magazine and USA Today Supplement - informing the public

  • The Hope Gala with major industry sponsors - informing the healthcare industry, Hope awards presented to Amgen and Akcea for their work to find a therapy for high Lp(a). First Lipoprotein museum exhibit opened at Museum of Surgical Science in Chicago, IL featuring Lp(a).

  

 

 

Advocacy

  • ICD-10 Diagnosis Codes for Elevated Lipoprotein(a) and Family History of Elevated Lipoprotein(a) - The codes monitor of the incidence and prevalence of diseases, observing reimbursements and resource allocation trends, and keeping track of safety and quality guidelines. They also include the counting of deaths as well as diseases, injuries, symptoms, reasons for encounter, factors that influence health status, and external causes of disease.

  • Lp(a) in the American Heart Association 2018 Physician Cholesterol Guidelines - recognized in the guidelines as a risk factor.

 

Research

  • The National Heart, Lung, and Blood Institute NHLBI working group on Future Research Directions on Lipoprotein(a) and Cardiovascular Disease Strategic Research Paper published in Journal of the American College of Cardiology - allowing for more funding for research into high Lp(a)

  

  • Recruitment of two Phase 1 and one Phase 2 clinical trials for a therapy for high Lipoprotein(a) - expediting clinical trials to get a therapy faster.

 

Patient Support

  • First Patient Forum in San Francisco - a research group to find out our communities needs to set a plan for the next five years.

   


>600 patients provided information about physicians in their local area

Patient  advisory board

Private Facebook patient support page -  grown from 300 to 807 members

Online patient community on Facebook and within website (SocialLink)

Foundation membership continues to more than double year over year

Global, online, support services

Clinical trial communication

Patient newsletter


Thank you for your continued support, clicks, donations, and contributions in 2018

Thank you to our Patient Advocates, Governing Board, Scientific Advisory Board and Partners

We hope you will help us start strong in 2019

Give the gift of prevention to your family and let's save lives-maybe even lives in your family!

Together we can save lives! 

 

Give your gift here

 

Wishing you; health and happiness always.





   
   
   
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