Making a Difference - 2015
January – Fiscal/Strategic Planning
Booth at Baptist Health South Meeting – Miami, FL
Promoted Heart Truth for Women
Featured on CardioSmart American College of Cardiology patient web site https://www.cardiosmart.org/Connect/Patient-Stories/Sandra-Revill-Tremulis
Todd’s Patient Advocate Story reached over 40K people on social media
Sandra and Steve Tremulis, Russell Kleber and Sheri Rous represented the foundation and spoke at the Patient Pavilion at the American College of Cardiology Meeting
Booth in ACC – San Diego, CA – with Sheri Rouse and Russell Kleber, Patient Advocates
2nd Scientific Advisory Board meeting held at ACC – San Diego, CA
Booth at Preventative Cardiovascular Nurses Association – Anaheim, LA
Triumph Motorcycles donated new T100 motorcycle to the foundation with a donated customization from British Customs and custom paint by Anaheim Rod and Custom as a tribute to the world’s fastest Triumph, The Gyronaut X-1. Motorcycle will be auctioned at fundraiser for the foundation.
Press Release with Triumph received 60K headline impressions
Foundation and SAB submitted Critical Question for NHLBI Strategic Visioning online input. Foundation gains 235 votes and is #1 of Goal #2 “Reduce Human Disease” and 3rd overall out of 563 submissions.
Foundation Partnered with Lp(a) Expert Meeting May 2016 Innsbruck
Founder participated in Rare Disease Report Video gains 10K views on Facebook and hundreds of views on Youtube. https://www.youtube.com/watch?v=ARuBga8fajg
Booth at National Lipid Association Scientific Sessions – Chicago, IL. Founder participated on Women’s Health Committee for National Lipid Assoc.
Foundation registered on fundraising site AmazonSmile https://smile.amazon.com/ch/46-3024812
Attended ESC in London met with European cholesterol charities to start global alliances
Booth at National Lipid Association meeting in Pittsburg, PA, Founder on the Women’s Health Committee
Sheri’s Patient Advocate story reached over 40K on Facebook and other social media sites.
Dr. Kochinsky (member of our SAB) and Dr. Boffa had booth at local community event in Canada and generated awareness for the foundation and Lipoprotein(a).
Booth at local community Diwali Festival in Silicon Valley – High risk patient group for the foundation
Booth at American Heart Association meeting in Orlando, FL, Akcea announce positive data for their Phase II trial on Lipoprotein(a) therapy.
Largest number of studies to date presented on Lipoprotein(a) at the AHA meeting.
Foundation listed and received favorable reviews on “Great Non-Profits” site. http://greatnonprofits.org/state/California/search:Lipoprotein%20a
Foundation featured on Akcea web site. Received unrestricted grant from Akcea for disease awareness for high Lipoprotein(a).
Over 200 plus patients referred by foundation to a doctor who can help with high Lipoprotein(a)
Over 3000 foundation brochures distributed to physicians, nurses, patients and their families
Foundation website membership has doubled year over year for 2014 and 2015
400 plus physicians added to our physician membership
Facebook , LinkedIn and Twitter following has doubled in 2015, Founders story has received 2156 Youtube views to date.