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Delivering on a Promise 2016
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Delivering on a Promise- 2016

January – Fiscal/Strategic Planning

Promoted ATVB Lp(a) Journal Cover Contest to generate awareness for Lp(a). 

The cover came 2nd in the contest. Physician Awareness

 

 

February

Booth at Baptist Health South Meeting – Miami, FL.  Founder, Sandra Tremulis, presented her patient testimonial to over 400 physicians to generate awareness for high Lp(a). Physician Awareness

Social Media Campaign to Promote Heart Truth for Women Public Awareness

 

Infographic Awareness Campaign February 25, 2016 - Did You Know That 63 Million Americans Have a High Risk of Inherited Cardiovascular Disease and May Not Know It?

This press release had 282 online postings with a reach of 80 million people. Public Awareness

Founder featured on the television on KTVU Channel 2 News after press release was picked-up by Pam Cook. The segment was aired twice and in addition to reaching it's 2.5 million viewers also received "35,000 Likes" on Facebook alone, see interview here.

 

March

Sandra Tremulis and Sheri Rous represented the foundation at the National Lipid Association Meeting in San Diego, CA

Physician Awareness

 

April

Press release Lp(a) highlights ACC research  4th April, 2016 Public Awareness

Lipoprotein(a) Foundation Highlights ACC Research Reinforcing the Significance of Lp(a) as a Genetic Risk Factor for Cardiovascular Disease

The Lipoprotein(a) Foundation recently issued an Infographic to raise awareness that a simple blood test could be the first step in preventing up to 120,000 cardiovascular events every year

This press release had 276 online postings with a reach of 84.5 million people 

Booth at ACC – Chicago, IL – Physician Awareness

  

May

Foundation Partnered with Lp(a) Expert Meeting,  May 2016 Innsbruck.  Founder, Sandra Tremulis presented to 200 international physicians and experts on Lp(a) and participated in assay standardization meeting. – Global Physician Awareness

In addition, the founder filmed a web-based educational video for European physicians on Lp(a).

          

June

May 17, 2016 -  Lipoprotein(a) Foundation Expands Global Scientific Advisory Board Public Awareness

Advisory Board to Be Actively Involved in the First-Ever Prospective Patient Registry to Study Lp(a) in the U.S. with Recent Grant from NORD in Conjunction with FDA

    

Foundation had booth at National Lipid Association Scientific Sessions – New Orleans, LA.   Most Lp(a) sessions presented at a NLA meeting to date! - Physician Awareness

 

July

Foundation awarded NORD Patient Natural History Registry – Public Awarness/Research Data

The Foundation recently announced that it has received a grant from the National Organization of Orphan Diseases (NORD) in conjunction with the U.S. Food & Drug Administration (FDA), to create the first prospective patient registry to study Lp(a) in the United States by collecting Lp(a) patient histories for research purposes. Members of the Advisory Board will be actively involved in data collection and analysis for the patient registry

 

August

August 26, 2016 - Lipoprotein(a) Foundation and European Atherosclerosis Society Partner to Raise Awareness of Inherited Cardiovascular Disease and Support Lp(a) Treatment Research

EAS President Dr A.L.Catapano, who has Joined the Lp(a) Foundation Advisory Board, Presents Lipid Control as Part of New European Guidelines at ESC  Public Awareness

September

Foundation attended Global Genes conference, Los Angeles, CA – Public and Genetic Disease Awareness

October

Foundation attended CardioMetabolic meeting in Las Vegas, NV - Physician Awareness

                            

Filmed Patient Advocate video featuring Justin – Pediatric Stroke and Lp(a)

To be featured in a campaign in 2017 – Public Awareness

November

November 10, 2016 - Lipoprotein(a) Foundation Highlights AHA Research Presenting Initial Results of Therapies Under Development to Reduce Lp(a)

Study Published in AHA Journal Demonstrates that Reducing High Lp(a) in those at Highest Risk could have a Significant Impact on the Burden of Cardiovascular Disease - Public Awareness

Lancet Reviews Clinical Implications of the Findings from Trials of Two ASOs Targeting Lp(a)

Foundation attended American Heart Association meeting in New Orleans, LA - Physician Awareness

Giving Tuesday/Cyber Monday fundraising campaigns - Public Awareness

December

Animated .gif Holiday Fundraising Campaign - Public Awareness

Mailer Campaign to 40,000 Cardiologists - Physician Awareness

Mailer campaign sent to 40,000 cardiologists, hematologists, endocrinologists etc. to generate awareness for the foundation and for repeat cardiovascular events despite optimally managed lifestyle and secondary prevention.

This campaign is in progress and will be reported on shortly...

2016 Results

Patient and Physician Support

Over 200 plus patients referred by foundation to a doctor who can help with high Lipoprotein(a)

Over 5000 foundation brochures distributed to physicians, nurses, patients and their families

Website:

Website membership has doubled year over year for 2014, 2015 & 2016

600 plus physicians added to our physician membership

Website traffic - over 53,000 visitors to the foundation website in 2016

Social Media

# of followers on:

Facebook - 2500 followers

40,000 impressions created in 2016 on Facebook

Twitter 1450 followers

589,000 impressions created on Facebook

LinkedIn - 890 followers

Youtube views to date of Lipoprotein(a) Channel Videos: 35,000

Featured Blog Post: HeartSisters

Public Relations/Press Release

# of press releases issued - 5 press releases

TV Coverage - Feature on KTVU Channel 2 News with Pam Cook

Total Impressions - 455 Million impressions

Total Headline Postings - 282 Headline postings

Featured Articles: FYI Magazine NY

Patient Advocate Stories

Laird's Patient Advocate Story to date has reached over 40,000 Cardiologists and the campaign is ongoing on social media with more results to come.

http://www.lipoproteinafoundation.org/?page=Laridsstory

Todd’s Patient Advocate Story to date has reached over 40K people on social media

http://www.lipoproteinafoundation.org/?page=ToddsStory

Sheri’s Patient Advocate story reached over 40K on social media.

http://www.lipoproteinafoundation.org/?page=SheriStory

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